Sleeping last night was an adventure to say the least. Wrestling
with my unrelenting mind I could not find it within my power to fall asleep. A
little anxious for the news I would hear today, I kept my thoughts elsewhere.
Waking up more exhausted than when I went to sleep I drudged through the day,
every spare moment my eyes locked to the phone waiting…
At 2:30 I got tired of waiting, I called them to check what
was going on with my results. The nurse was away, I was assured she would
contact me with results when she reviewed them. The suspense broke me, noting
it was getting close to the end of the day at 4:00 I called again, the nurse
had yet to review the information with my doctor.
At 5:03 pm, Friday, October 26th I got the call.
She asked me how I’m doing, knowing full well the weight, the information in
her hands held, to me. Her voice dropped as I responded and she began, “the
results of your lab work still show that it’s detectable.” She apologized as if
she had some measure of control. So as not to needlessly inject tonight, i pushed for an answer, as my
doctor agreed, I stopped treatment.
Four months after i started this..
The treatment has failed.
Four months after i started this..
The treatment has failed.
While I know there is a treatment in the future now, one
without interferon, I must go a year without an episode. Something I've yet to
be able to do, As I consistently have had bleeds since being diagnosed with
Esophageal Varicies.
The future’s sky seems a little less bright, but that’s no reason to give up the fight.
The future’s sky seems a little less bright, but that’s no reason to give up the fight.
I've spent the last four months putting myself through all
kinds of hell, I've lost over thirty five pounds of muscle and fat on this
treatment, I’m weak, and brittle. I’m tired and my eyes lose focus of elements
right in front of me. The muscles in my hands shake violently when I strain
them, exhausted from lack of blood. I still bleed from less desirable places,
each day reminding me how ragged I've become.
But now I must rebuild, as I have done before, I must focus myself on who I am and what I want from life. For it may not be a long life, but it will be bright, joyful, and filled with love and laughter.
I would be a fool to let something as little as failure hold me back.
But now I must rebuild, as I have done before, I must focus myself on who I am and what I want from life. For it may not be a long life, but it will be bright, joyful, and filled with love and laughter.
I would be a fool to let something as little as failure hold me back.
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