About Me

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Peginterferon-Ribavirin, Failed it twice. Incivek, Failed it. Sovaldi Olysio, failed it. Harvoni, failed it... Transplant Patient Zepatier and Sovaldi...we'll find out!

Wednesday, December 25, 2013

Trouble will find me

With my offer rescinded I head out to shop this holiday season for a new job. It’s amazing how I seem to keep falling into these bizarre circumstances; where just a little bit of hope dangles in front of me, Only to slam the door in my face and leave a sliver of light to encourage my persistence. Luckily through covered CA I should be able to find a way to reduce my costs, and keep my hopes that this spring I can start treatment. So for now, Merry Christmas, and if you don’t celebrate Christmas, happy day off where most everything is closed! Unless you work today, then enjoy your federally mandated holiday pay! Unless you’re paid under the table… anywho merry Christmas to you!

Also The National's Trouble Will Find Me is a fantastic album if you have a chance to listen to some mildly depressing rainy day beach music.

In the meantime I encourage you to join/donate! Only a little over a month left to register for free for the liver life race.

Sunday, December 15, 2013


Not to be confused with invulnerability.

Last Friday I was offered a contract, after accepting it I spoke with my soon to be supervisor(s)… the next day the offer was rescinded. While that happened i did some searching, It took me a bit to figure out Cobra vs. the marketplace and how big of a financial impact this will have, but it’s not pretty.  On top of this I found out the treatment I’ve been hoping to take may not be for my Genotype…which means another year or so until I’d be able to start.

But hey...'tis but a scratch.
Thankfully I am still able to sub, and I love being back but obviously the circumstances are bittersweet.

As some of you know John Mayer is a favorite artist of mine. His discography has helped me gain perspective on many challenges, so I leave you with the song The Age of Worry.

Registering before feb is free.

If you don't want to/can't sign up or join then please donate.

Saturday, December 7, 2013

Happy Holidays!

A great many events have happened this last fortnight. Chief among them being the termination of my probation contract, this of course followed directly by proper use of the word fortnight.
After returning from thanksgiving break I met with my supervisor and director for a follow-up evaluation. In summation I was told that my probationary contract had been terminated.. Things ended on a positive note however and they suggested I reapply.
A lot rushed through my head as I packed up my things, I’d never been terminated before, this felt horrid. I truly loved working there, the kids, families and staff were wonderful. I would have liked to say goodbye.
But here’s the big reason why I mention it here… it means that my plans for treatment in feb/mar are unlikely and that it could get pushed even further out.
Luckily thanks to a bizarre circumstance I’m in I will be able to get another contract within a few weeks. In the last week I’ve found help offered by so many dear friends. Thank you all. I don’t know what’s to become of my benefits and it’s unnerving.

As for treatment my hope now is may/june, but even then… we shall see what the future has in store.