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Peginterferon-Ribavirin, Failed it twice. Incivek, Failed it. Sovaldi Olysio, failed it. Harvoni, failed it... Transplant Patient Zepatier and Sovaldi...we'll find out!

Thursday, September 11, 2014

Statistics, probably.

 I'm 28 years old, white, straight, and male, and none of that has any bearing on Hepatitis C.

With one exception: cure rates. Turns out more white men begin/finish treatment.

(I'd be willing to bet that the vast majority of those men are over 40)
That's a big fuckin' problem. Especially considering this: "African Americans comprise 22% of Americans with hepatitis C, but account for less than 5% of participants in HCV clinical trials."
http://cid.oxfordjournals.org/content/42/1/82.full (sometimes it's nice to have the source quote's source)
 I went on to the CDC website recently to see why... and two things came to my attention when looking at informational campaigns:  The people in the photos, and the target of baby boomers over anyone else. I decided to start reverse image searching the faces on their pamphlets, curious as to how they got all of these people who have HCV to take such dynamically different photos. To my frustration, I'd find that it's because they're stock images.

Sometimes the image is so cropped i could only find other ads, after this, i stopped searching out of frustration with the truth.

I had hoped that the individual posters might have better luck... but that was not the case

I understand why people use stock images. but...
Infographics have a limited space, and stock images detract from it
Could you imagine how much more genuine the material would be if that 'Faces ofC'
 statistically reflected the makeup of HCV infection across the USA... Photos from real people, who have HCV are so much more genuine... or at the very least as the face of  Hepatitis C in their ads.
Also, the CDC literally has all the info at its fingertips. How it can maintain this level of neglect, I'm not really sure. It's been over two years on this HCV testing campaign began which has received no boost in attention. With so much more information out it would be nice if campaign fliers were relevant.

As you can see here it's been a while, They don't update their resources...

There is a large focus on the Baby boom generation, in fact it's the only area where the CDC chose to focus its campaign materials.
Which means that when people see infographics/campaign resources from the CDC they'll believe it to be an issue for those born from 1945-65. With a campaign name like "Know More Hepatitis" i expected more.

It does have two other pamphlets which are on the CDC/Hepatitis site... which target Gay/Bisexual men
(actually doesn't recommend testing for certain scenarios) and Convicts.

This is an informational campaign! It means that everything here, ALL OF THESE MATERIALS should use every nth of power they have to INFORM.

Hepatitis C information must take a mass appeal approach. I don't mean generic, i mean inclusion. Presently the support structure is beneficial for me, a white male in the baby boom generation with adequate health care provided by my job, in that i have access to the doctors, the treatment and the care required.

But I'm not a boomer, I'm 28 and I obtain insurance through Covered California, and it was months of back and forth before they finally settled on giving me 1/2 a treatment. There were probability benefits to the 12 week, but the larger reason for not doing 24 weeks was that it simply wasn't covered, facts i realized into the treatment.

This is everyone's fight, and a general dialogue of a universal struggle will help paint a more constructive picture.

The idea that ANYONE can have this. While the materials say it doesn't discriminate... the CDC campaign would indicate otherwise. If it doesn't discriminate then i must ask why target specific populations?

Because they're 5x more likely? because 2/3 of those incarcerated are infected? Because anal sex is more likely to lead to a blood to blood transfer?

No need to worry about forgetting "specific populations" in an inclusion campaign, it reaches out to everyone on a more personal level because unlike the CDC's material, the virus doesn't discriminate.

Get Tested.

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