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Peginterferon-Ribavirin, Failed it twice. Incivek, Failed it. Sovaldi Olysio, failed it. Harvoni, failed it... Transplant Patient Zepatier and Sovaldi...we'll find out!

Sunday, February 9, 2014

Drop in cabin pressure

 The last few weeks have been a doozy! My legs have added a new source of frustration, the solution to deal with ascites was to get rid of all that excess water.

I could not have foreseen what happened next, within a week I lost near 15 lbs, turns out flushing all the water out of my system has left me rather bone skinny. After a week of the rx, I was introduced to what has become a new daily battle.

My legs seized, while most of the muscles cramped, the rest Charlie horsed or fell asleep depending upon the angle. For a good near hour I was restricted to the floor, I am lucky in that my friends were all there to take care of me. Ice did very little, heat helped more, so heat and steam became my remedy until they depeleted their usefulness. After talking with a friend of mine she explained a few things about the rx I was on. Turns out, in flushing your system, potassium, sodium and magnesium get depleted easily. To make the balance harder I am on a low sodium diet, making supplements, and fruity snack choices my primary tools alongside water in preventing the debilitating  leg pain.

The pain, I can get used to, I can deal with it. but the frustration is with my newfound lack of independence. It’s a hard concept to take in, to know that where I stand presently, i essentially can’t risk driving too far by myself, and at times I can’t drive, can’t move. i’m getting a pretty good handle on it, which is nice because I’m certain I will be able to stop taking them soon.

Also a new staple to my diet is massive amounts of protein I am to be having a minimum of 40-60gs per day. Luckily I always make sure to do curls and wear sunglasses while I drink my protein drinks.

The Liver life walk team is growing!!! I’m so excited, we’ll be ordering shirts third week of march so sign up before then.

 I also have an upper endo soon, the day after my birthday next week, woohoo. lets hope to keep the varicies under wraps.

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