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Peginterferon-Ribavirin, Failed it twice. Incivek, Failed it. Sovaldi Olysio, failed it. Harvoni, failed it... Transplant Patient Zepatier and Sovaldi...we'll find out!
Showing posts with label What is Hepatitis C. Show all posts
Showing posts with label What is Hepatitis C. Show all posts

Tuesday, June 2, 2015

They're gonna shove what down my throat?

Next Week I'll be under the knife so to speak. Every 4-6 months I go in for an outpatient surgery. There's not really a knife involved there is however a scope, some bands and other odd-looking tools. The procedure is called an Endoscopy.

The regular procedure started occupying my calendar after an incident in 2011. I felt weak, light headed, had unusual breath, stomach pain and black tarry stool. I pushed through it for five days before going to urgent care where they explained to me the severity of what was happening. I was bleeding internally through ruptured veins in my esophagus. Since there was a lot of blood in my stomach they used a Balloon Tamponade.

Balloon Tamponade



When I went in the first time, they used this incredibly painful contraption, made all the more painful thanks to the ambulance ride across town. I had the pleasure of watching the dried blood get pulled from my stomach through my nose for a few hours. They also gave me morphine, which just makes me feel like I'm on fire.

Since then, bleeds have happened half a dozen times, varying from catching it on my routine endoscopy, to a blood transfusion and trip to the ICU.

There are several versions of an endoscopy. What I will be doing next week is an Upper GI Endoscopy, which means they'll be looking at my esophagus down to the stomach entrance. It's a rather quick procedure typically taking a few minutes, longer when banding occurs. In the US we use anesthetic to minimize the discomfort and make the process faster. Some people will retch regardless,
I am unfortunately one of those people. When you've got a tube down your throat and you begin to retch, it becomes more likely to burst a vein.


But that's probably the best time to burst a vein, since the doc can fix it real quick.

The banding process is interesting. Essentially a rubber band ties off the bleeding vein, causing them to balloon and completely rupture. The residual blood is digested and reabsorbed.





If you happen to get banded, the throat becomes incredibly sensitive, and it's a soft food diet for a few days to a week. So if you suspect you've got varices have some pudding, soup, milk, juice, yogurt at the ready.

I also prep by shaving my face the day prior, while it's not necessary, it does help make sure they don't break your lips, or give ya some hardcore chaffing from the gag.


an example of an endoscopy gag


It can also be a pain in the neck, literally. The discomfort from an endoscopy typically sticks with me for four days to a week. If i get banded, it's a week to three depending upon the bleeders and how much i retched during the procedure.

Typically the discomfort goes away quickly, unless you retch a lot, then it sticks with you.

In addition to my procedure next week, i may find out a little more about the future of my treatment.

Thursday, May 28, 2015

Knock down five stand up six.

Some introspection I've come into whilst failing treatments.

When it comes to goals, I see a lot of inspirational quotes and lots of motivational goal oriented articles, blogs, ad nasuem. But what I've come to realize is that it's important to understand what level of impact your actions have on the goal you're trying to achieve. While a positive attitude is great and can mean the world in a situation as dire as treatment, it's become clear to me a few things....

One of the first things you should understand if you're going to start a Hep C treatment is that it's not a goal. How hard you work, whatever you do has very little impact on the success or failure of the treatment. There are a few things that can help a treatment: proper cleaning and handling of blood/hygiene, a nutritionally balanced diet, exercise, and a good support network.
But besides the blood, it's not much different than everyday precautions.

The treatment is largely out of your control. It may sound disappointing, but it's important. Because if it fails, this attitude can help you move forward. I've failed five different Hep C(HCV) treatments, it's hard not to take it personal, but it's necessary.

Remember that how you acquired HCV was out of your control. Certainly there are high-risk behaviors, and age groups but that's analysis, but it has nothing to do with how you got it. The lack of control as to how you got it, is the same lack of control regarding it's purge.

What matters is that there are factors about HCV you can control.

You can learn more about the virus, and educate those around you.
You can find information regarding treatment, and which one is best for you.
You can reach out to those around you to/for support, physical or online.
You can encourage others to get tested, to understand your abilities, and to understand prevention techniques.

This treatment isn't a goal, it's an obstacle, just like the virus itself.

The only goals you need regarding treatment, are the one you make beyond it.