The frustration with invisible
disabilities comes from people not believing or understanding my
condition.
Most of the time when I
go to Disneyland I've found their Disabled services helpful and
courteous...once they realize that I'm not lying. I understand the challenge
that comes with discerning a person with disabilities needs. Disney has gone
out of their way to create systems to promote and help every guest have the
magical experience.
Last week, I was met
with a new change in policy, which I became familiar with following my discussion with
Guest Relations.
(The Disability Access Service(DAS) policy now
allows some rides to not require a DAS pass if they see a physical impairment
like a wheel chair or knee brace.)
After explaining that I'd
previously been issued a pass due to my inability to sit, stand, or walk for extended periods of time, explaining how ascities work, and fatigue that also
comes along with advanced liver cirrhosis. She asked if I used a wheelchair or
cane at home, to which I responded that I have a cane for when I need it. I then reiterated
how ascities impairs one's normal functions. and that I've done this
before, I've gotten DAS passes to help enjoy the park with my disabilities.At this point it became evident she did not believe me. She
said there was a recent change in policy, suggested I use a wheel chair or
cane, and continued to explain the rides at which they would allow me to use an
alternate service because of a visible impairment. I reiterated my need, unable
to explain my point further due to my lack of knowledge as to how the new policy had
changed.
To help explain, as
someone who doesn't outwardly appear as though I need the assistance, being
in a wheelchair or using cane creates a different experience. Some either speak to me like a child, or speak
to the person wheeling me around. Those who think I'm gaming the system,
will walk up next to me, and talk about me. The more timid assholes just
make comments and stare. I have no interest in evoking these reactions; alongside the challenges
of navigating Disneyland in a wheelchair when I do not always require it. Which, when a guy like me walks around out of his wheelchair...every stare,
ever comment just gets worse. So without a DAS pass, I instead have a
choice wherein I can attempt to deal with shorter lines that I can find; or
grab a wheelchair be allowed to use the services on a few rides, and sit back
and "enjoy" the rides.
I applaud Disney's efforts
in helping anyone and everyone have a magical day, but it's distressing and
frustrating to be met with outright opposition by staff because of a lack of
understanding.
You are right no one can grasp the fact we are sick!! If our arm or leg were as mangled as our livers.... they would get it. Our livers have to keep us alive . I read all of your blogs to keep me sane. They are spot on right down to the hand spasmsoooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooo I had a blood transfusion. Yes as you can see falling asleep while typing too.
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